After a long anticipated wait, we received a phone call on June 7th at 14:08 informing us that a donor offer for double lung transplant had been accepted by the St. Louis team. The lungs are the last organs removed and survive out of the body for a mere four hours. Given that, OR timing…

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June 14th:Will is truly one of a kind. In all the struggles of his life thus far, he has overcome those moments with a lousy pair of lungs. At just 14 due to a bacterial war in his lungs, cystic fibrosis was calling the shots. Although they said they have seen worse, he definitely ranked…

June 21st: Courage-the quality of mind or spirit that enables a person to face difficulty, danger, pain, etc., without fear; bravery. Second definition- Will Flynn I may have sold him short in his mental preparedness, it was far better than mine. From transplant day forward patients take a long slate of meds, require weekly to monthly to yearly scans and tests, constantly looking over the shoulder measuring the chance for rejection. The surgeon…

July 9th: Note the scene in the sky, one that I’ve been  for quite a chunk of time. Through the years, rainbows have been a symbol that the personal struggle at hand has subsided and the world, even if only temporary, is again on the right axis. By chance, Will has found care for CF and…