June 20th

 Leaving on Easter Sunday, Will and I have been determined to transform this city into ours. But in two weeks, it’s the Fourth of July and progress has been slow at owning our place. Although we have reminders of home and have added touches of style, filling the void of the dearest things that we miss remains impossible.

July 14th:

I’m truly lost in time, deep in this experience. Post transplant life is full of more ups and downs, just at a different rhythm. The everyday struggle to breathe has been eliminated and he now has a new reserve of energy that has never been there before.

But the underlying mental hurdles are ramping up. It takes so much effort and my chest was not even touched. With new lungs, some of the tides are now in Will’s control.

August 4th:

No place I’d rather be than on Summit Blvd, on a Sunday in summer close to all family. I can’t imagine accomplishing greatness and not being able to release until we walk through the front door again.

I’m grateful for the many areas of support. From my employer who has allowed me to remain at my son’s side throughout this process, people who send uplifting cards the old fashion way, messages from the closely loved to make sure I stay focused to meet the challenge of any situation, and the groups of people here at St. Louis Children’s who have seen the ups and downs of transplant from an entirely different view.

Whether it is a push, a pull, or side by side at ease, the sigh we are waiting for is closer than ever. #LastmonthintheLou